Privacy Policy

Our Online Privacy Policy

The Pharmaceutical Research and Manufacturers of America (PhRMA) and the Personalized Medicine Coalition (PMC) are committed to protecting the privacy and security of visitors to our websites. Outlined below is our online privacy policy for information collected through our The Age of Personalized Medicine website and email lists. If you have questions about these policies, we encourage you to talk to us by using our feedback form.

Resale or disclosure of information to third parties:

We do not share or otherwise disclose any personal information without your permission, including your name, address, or email addresses with other organizations or individuals. Only PhRMA, PMC staff and our authorized agents have access to personally identifiable information provided by visitors to our site. Individual members of PhRMA and PMC may contact you about future health care issues.

Blog Submissions

If you decide to submit a comment to our blog, you give us permission to publish your comment in whole or in part.  If you submit your name with your comment, you also give us permission to publish your name (first and last) in connection with your comment.  To protect your privacy, please do not include your phone number or email address or other personally identifiable information in the body of your comment.

Browser information collected on our website:

As with any website operator, PhRMA and PMC analyze our website logs to constantly improve the value of our website. We use an external service to provide real-time reporting to us and our authorized agents of browser accesses to our site. This reporting includes page views, unique views, unique visitors, repeat visitors, frequency of visits, and peak-volume traffic periods. We do not use this service to gather, request, record, require, collect or track any Internet users’ personally identifiable information.

Personalization of Content:

We use cookies on our site to personalize and customize the experience of our visitors and to support some necessary functions. We also use cookies to better understand how our visitors use our site.

You also have choices with respect to cookies. By modifying your browser preferences, you have the choice to accept all cookies, to be notified when a cookie is set, or to reject all cookies. For more information on how to modify your browser settings to block or filter cookies, see However, please note that if you reject some or all cookies, your experience at this and on other sites throughout the Internet may not be complete. In addition, if you do not allow cookies, you will not be able to take advantage of personalized content delivery offered by other Internet sites or by us.

Privacy of our email lists:

PhRMA and PMC maintain several email lists to keep PhRMA and PMC members, the press, and policymakers informed about breaking events. Individuals must request to join our mailing lists. Individuals who provide optional information may also receive materials in the U.S. mail and or be contacted by telephone by authorized PhRMA and PMC representatives. In addition, we do not share the email addresses on our lists with outside of PhRMA and PMC staff and authorized agents. Only PhRMA staff and our authorized agents have access to personally identifiable information provided by visitors to our site.  If you would like to unsubscribe from our mailing lists, you may do so by emailing us at

Children’s privacy:

Because we care about the safety and privacy of children online, we comply with the Children’s Online Privacy Protection Act of 1998 (COPPA). COPPA and its accompanying FTC regulation establish United States federal law that protects the privacy of children using the Internet. We do not knowingly contact or collect personal information from children under 13. Our site is not intended to solicit information of any kind from children under 13, and we have designed our sites to block our knowing acceptance of information from children under 13 whenever age-related information is requested.

It is possible that by fraud or deception we may receive information pertaining to children under 13. If we are notified of this, as soon as we verify the notification, we will immediately delete the information from our servers. If you want to notify us of our receipt of information by children under 13, please do so by emailing us at

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